What is autism?

Autism is a complex neurodevelopmental condition that is often associated with childhood diagnosis. However many autistic people go undiagnosed during their early years, which can lead to challenges in various aspects of life. We are increasingly recognising the need for autism assessments in adults, and organisations like us are at the forefront of providing services that support autistic adults in work, learning and everyday life.

In this blog post, we will explore the importance of testing for autism in adults and how Aim Forward, a UK-based organisation, is making a significant impact in this field.

Understanding autism in adults

Autism spectrum disorder (ASD) is a neurodevelopmental condition associated with a range of behaviours and traits, including difficulties with communication, social interaction, and repetitive behaviours. While autism is usually diagnosed in childhood, many autistic people may not receive a formal diagnosis until adulthood, if at all. This late diagnosis can lead to several challenges, including:

• Missed opportunities: Without a diagnosis, adults with autism may miss out on valuable interventions and support services.
• Mental health issues: Undiagnosed autistic adults have a higher risk of experiencing mental health issues like anxiety and depression, often due to the challenges they face in daily life.
• Relationship difficulties: Understanding your autism can make it feel easier to build and maintain supportive relationships with family, friends, and colleagues.
• Employment challenges: Autistic adults may have difficulty finding and maintaining a job if their unique strengths and challenges are not recognised and accommodated.

The importance of testing for autism in adults

Diagnosing autism in adults can be important for several reasons:

• Access to support: A formal diagnosis can open doors to support services, therapies, and accommodations that can significantly improve an autistic person’s quality of life.
• Self-understanding: A diagnosis can provide autistic people with a better understanding of their unique strengths and challenges, which can lead to improved self-esteem and self-advocacy.
• Family and relationships: A diagnosis can help family members better understand their loved one’s behaviour and communication preferences, which can lead to improved relationships and support.
• Workplace accommodations: Many autistic adults have valuable skills that can add value at their workplace. A diagnosis can help get workplace accommodations, ensuring that talents are recognised and used effectively.

How to get a diagnosis of autism in adults in the UK

Getting a diagnosis of autism in adults can be a helpful step towards understanding yourself better and accessing the right support and accommodations. In the UK, there are established processes and resources available to help adults seeking an autism diagnosis.

Recognise the signs

Before seeking a diagnosis, it is helpful to understand the signs of autism in adults. These signs can vary widely from person to person, but often they include challenges in social interactions, communication difficulties, repetitive behaviours, and sensory sensitivities. Keep a journal of your experiences and behaviours that you think may be related to autism. This information will be helpful when having conversations with healthcare professionals.

Contact your GP

The first step in the diagnostic process is to contact your GP. Explain your concerns and provide the information you’ve written down. Your GP may refer you to a specialist, such as a psychiatrist, psychologist, or neurologist, who has expertise in diagnosing autism.

Assessments and referrals

The specialist will run a thorough assessment to determine if you meet the criteria for an autism diagnosis. This assessment may include:

• Interviews: You will be interviewed about your childhood, behaviour, and experiences.
• Questionnaires: You, your family members, or close friends may be asked to complete questionnaires to provide additional information from the perspective of someone who has known you for a long time.
• Observations: The specialist may observe your behaviour and interactions in various settings.
• Medical examination: A medical examination may be conducted to rule out other conditions that could be contributing to your symptoms.

Evaluation and diagnosis

Based on the assessment, the specialist will make a diagnosis. In the UK, autism is typically diagnosed using criteria outlined in the DSM-5 or the ICD-11. If you receive a diagnosis, it will specify whether you have autism spectrum disorder (ASD) and may include additional information about your strengths and challenges.

Post-diagnosis support

After receiving a diagnosis, you may be able to access various types of support and services. These may include:

• Information and advice: The specialist who diagnosed you can provide information about autism and strategies to manage challenges.
• Access to services: You may be referred to local autism support services, therapy, or counselling.
• Workplace accommodations: If you are employed, you can discuss workplace accommodations with your employer to ensure your needs are met.
• Support groups: Consider joining autism support groups where you can connect with others who have similar experiences.

Advocacy and self-care

A diagnosis can be a powerful tool for self-advocacy. Knowing your strengths and challenges allows you to advocate for your needs and rights in various aspects of life, including education, employment, and healthcare. Additionally, practice self-care to maintain your physical and mental well-being.

Getting support

Getting a diagnosis of autism in adults in the UK can be a significant step towards understanding yourself better and accessing the support you need to thrive.

Aim Forward is at the forefront of these services, providing accurate needs assessments, tailored support, and a path to embedding new strategies through coaching for adults with autism.